During the two months though Janessa had five line breaks, all were fixed until the fifth one, it was the last of her line left and they had to replace it. So Janessa was put as an add on and got her new line. Now the line is in place and functioning fine. We are having problems with the loops though, they don't seem to want to stay in, and with a moving baby it's the hardest thing in the world to keep a line in. One inch of movement and it doesn't work, so you got to keep it secured.
Our recent problem now is that Janessa's tummy keeps filling up with stomach fluid causing her to throw up if we don't drain it out in time. As you know nothing moves in Janessa's stomach, so it causes anything that goes into her stomach to just sit there and not go through the intestine which it should. If it fills up too much then she throws up. We have to drain her stomach for a half hour after every four hours, and even sooner if her stomach is distended and she is irritated. So now we're working on why is this happening all of a sudden and what should we do?
I've noticed that Janessa's bile doesn't relate to the formula feeds, there is a large amount either way with or without formula put in.
Janessa's liver numbers have also went down with the new lipids she is on "Omegaven" and it works wonders! Janessa's bilirubin was at a 15.8 which was very high for only being on TPN for a month and a half(that was from the soy bean lipids they were using). Now her bilirubin as at a 1.29, and her liver is functioning so much better!! We are so happy about this, this saves her poor little liver from any damaged caused by the old lipids she received IV
My plan is to keep this more updated for now on, to be more specific with Janessa details.
xoxoxoxoxoxo Marybeth,
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