Janessa had an ICARE appointment(Intestinal care). It went extremely well today. Dr. Squires came in and I haven't talked to him since Janessa was only a few days old. He seems to be happy with Janessa's progress, but still Janessa is not gaining much weight, she is just so tiny. They kept her feeds and TPN time the same so hopefully eventually we'll get her down more!! Her omegaven increased and everyone was just so happy with how she looked today, it was amazing. So we are good in that department until next month, now I'm just waiting for the MRI results to come back.
Janessa's line has been looking a little funny to me. It has been draining for the last few weeks now, but for two weeks it always drains a bit(a yellow brown color), but it's continuing to do so today, and its a bit pink around the site, it looks irritated rather than infected, but I'm not sure. So we called the GI doctor on call to see what they thought(if we should bring her in or not). They said it would be fine until they talk to the team tomorrow because she has NO FEVER, and isn't any fussier than usual. I just don't know what to think. She is on antibiotics for UTI's but I don't know if the antibiotic would contribute to any of this, at least it should help a little unless if she does have a line infection it's resistant to it(but then she would have a fever for sure). I guess we'll just see tomorrow and keep a watch on her temperature.(We do it rectally when she may have something wrong like an UTI or possible line infection which she has had neither in 6 months). I guess I'll wait until tomorrow unless she spikes a temp(it's at 97.9 now).
I'll keep this updated.
Marybeth.
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