So Janessa Janee's line looks pretty good. There doesn't seem to be any sign of infection anymore, since she doesn't have a fever what so ever! Her loop once again started to come out today. There are two grip locks on and stat lock and it still manages to come out! When this happens I put the tubing across her tummy, it makes it more secure until the next week when I can do a dressing change and correct the loop. This is going to be rough especially when she starts crawling around, and it'll only be a matter of time, since Janessa is almost six months old!! Seems like yesterday I first found out I was pregnant with her, time sure does fly. It makes me sad to see my daughter starting to grow up and get big, but its also a joy knowing that she is a fighter and will continue to fight this battle of MMIHS which she is doing so well with! She is napping right now, so it's a perfect time to blog about her, good thing I did all the cleaning this morning!!
Anyways, as yins know winter is coming up, and with winter here in Pennsylvania it means extreme cold and miserable days. Well I have a problem keeping her warm with a central line, and keeping it protected from her pulling it. So I know another mom has bought these for her TPN baby, and I so want to get them for Janessa to keep her warm in the winter!!
So here is a link to them The Little Leg Warmers!! They would be so cute with her, and I could put a hoodie on and a onesie without any line troubles!!!
Also 77kids has a infant section for infants 0 - 18 months and the clothes are so adorable, they are made by American Eagle. I think I found my clothing wear to tell santa for Christmas!!
American Eagle Baby Hoodies <--- They have such adorable clothes!!
I am honestly happy to say despite Janessa's condition and abnormalities in her life at least she is staying healthy and we are not always hospital bound!!
Well I'll keep this updated if anything new happens, hopefully we'll get our MRI results, I think I'm going to call tomorrow and find out how they went.
xoxo Marybeth.
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