Janessa had an ICARE appointment today, and it went extremely well!! I was really excited to hear she gained a few ounces, she is 17 lbs 13 oz. Her doctors seem really happy with that, and are just amazed at how well she looks! Janessa as of now is taking 2 ounces of food at a time, and snacking on baby cookies or cheese puffs here and there. The doctors today said to increase little by little as long as she tolerates it, which works great by me : )
We also got Janessa a new book bag made today, and it fits her perfectly! I can't wait to try it out tomorrow, I promise I will post pics in the morning with her wearing it!! <3
Hi, my name is Tamara Barone, my niece, Georgia (three years) is suffering from MMIHS. We live in Italy and try to contact other families with the same problem to exchange information His TPN was followed by an English hospital, the GOSH. in August will go to Miami for the evaluation of organ transplantation. I hope to read one of your e-mail. thanks a greeting from Italy Tamara
ReplyDeletetamyba@yahoo.it t.barone@ttengineering.net
Salve, mi chiamo Tamara Barone, mia nipote Giorgia (tre anni di età) è affetta da MMIHS. Viviamo in Italia e cerchiamo di contattare altre famiglie con lo stesso problema per scambiare informazioni La sua TPN è seguita da un ospedale inglese, il GOSH. in agosto andrà a Miami per la valutazione del trapianto di organi. Spero di leggere una vostra e-mail. Grazie un saluto dall'Italia Tamara