So, not much recently has happened, except for our long drawn out waited motility study that occurred last week in Columbus Ohio that determined Janessa's actual motility in her stomach and bowels! We left for Columbus on Tuesday, it was about a 4 hour drive, of course we got lost so it was a bit longer, but we made it there in one piece! The study occurred at Nationwide Children's hospital, and I must say it is such a clean hospital, and organized hospital!! Everybody was so impressed with how well behaved Janessa was, she was such a doll for the whole procedure.
Basically her procedure lasted about seven hours, and they put a series of sensory tubes into her tummy and they picked up any series of bowel movements over that time period, during the time period also we gave her IV medications that could potentially help increase her motility, and hopefully we would be able to get feeds into her tummy.
Well unfortunately, Janessa has minimal bowel movement... I wasn't really expecting much, I knew with her diagnosis she wouldn't have much, but I was hoping that there would be a bit of a chance somewhere out there... So now those result will be sent to our gastro and transplant team, and we will see what our plans will continue to be or how they will change, I will update this on Thursday with that information.
Otherwise other than that, Janessa has been well, she has been counting like crazy, knows all her colors, shapes, and her ABCs. She hasn't fully learned to walk yet, she walks with a push walker, but she can climb up playground equipment, and stairs, so hopefully it's only a matter of time!!
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