Tuesday, November 1, 2011

November 1st 2011: An update, but I'd rather it not be so.

Last week Monday as many of you probably already know Janessa was hospitalized because she broke her central line. Usually with a central line they are able to repair and we go on our way, well that wasn't the case, the surgeons put a 5 french single lumen line in her chest and Children's didn't have a repair kit for it(nowhere in the Pittsburgh area did) so she was left to have to get her line replaced. I wasn't too happy about this ordeal because that was a risk for her to lose more access space(which is vital for chronic TPN patients), luckily they got the line threaded back into the same spot, and they put a size 4 lumen back in which was a positive for us! The whole procedure went well, and of course we were sent home later that evening.

Everything was great for a few days until Sunday morning when I was changing Janessa I noticed her central line site was swollen, pussing, and it felt HOT! I took her temperature at first and it said 99.9, I gave it about an hour to see if maybe she was just hot from being in warm PJs, well that hour later her temperature was 100.4 so we took her down the children's to get it checked out. Janessa had a weird smell coming off her while we were in the ER. Right before they did a dressing change I looked to the other side of her chest and noticed that the dressing was completely ripped open, obviously allowing for bugs to get into the line. Well that of course was where the smell was coming from, her infection was pretty bad at the point and her fever went to 101.9.

Of course being admitted and started on vancomyocin and some other antibiotic that I can't think of right now her temperatures started to fluctuate. The following day when our favorite doctor came in we checked her site and stated that there could be a possibility that the infection was tunneling under the skin and into the tissues(which is hard to get rid of since there is nothing vascular in the subcutaneous tissues(infections are killed via blood stream). Luckily the infection didn't seem to be tunneling and wasn't tender in going up the track of her central line, but in the worst case scenario the line would have to be removed, which is something we DON'T want. The infection could be from a number of things, the line placement, ripped dressing, internal bug, etc.

As of today, her blood cultures are negative but they drew another blood culture to see for sure. I'm not exactly sure what is going on today since I didn't get to talk to anyone from the hospital, unfortunately I'm stuck 40 miles away at home by myself because of school, and not with my baby girl and my fiancee. I'll be heading down tomorrow, hopefully will know more about what is going on, and hopefully will know a discharge date!

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