We have been having crazy amounts of snow lately, it's been ridiculous, luckily Janessa is doing so well, and there has been no needed trips to Pittsburgh! She does have an appointment this Thursday, which we are anticipating will go well!
We haven't had many problems with Janessa except for frequent ostomy leaks. Her ostomy seems to leak every single day, and it's really irritating her skin! We have tried everything, so hopefully at children's thanks to a TPN friend of mine we will be able to talk to a stoma nurse about what we can do about her ostomy problems. Janessa's potassium keeps running on the low side as well. Even though they don't seemed concerned about it because it isn't at dangerous levels it's concerning to me a bit! Hopefully they won't let this go again until it's too late and she's in children's for an electrolyte imbalance.
I guess there isn't much else to say, she has been having weekly OT and PT meetings, and has doing very well with them. It's still just a mystery why Janessa hates standing on her feet, hopefully this problem will elevate itself soon! Thank you all for reading!
Marybeth
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