During our final few days at children's they attempted to feed Janessa some breast milk to see if she could tolerate it. She wasn't able to, but they wanted to try again at a later date. Janessa was released from the NICU, and put in a regular room. She made a little friend there by the name of Bryan!! I'll post a picture of the two!!
Janessa was released from children's, and Caleb and I are now with her at this place called the children's home! Here we are learning to do her TPN, and the rest of her care. We have everything basically complete right now, and Janessa is doing great!
During our stay here, Janessa has peed more frequently, but we still have to cath her every three hours. Also a few days ago they started the feeds again on Janessa and so far she has been tolerating them, and loves them! We are hoping we can increase the volume of formula, we will see!! Her condition is basically trail and error.
Also to my knowledge next week she has an appointment with the GI doctors, and they are going to start her on omegaven(a different type of lipid which is infuzed into her TPN) it's suppose to save livers from damage.
Right now all we are waiting for is the nurse care to be set up at night(12 hours a night) so Caleb and I can get some sleep!!(The catheter is the problem with Janessa it has to be done every 3, so you wake her up, do it, and spend 2 putting her back to sleep) After the nursing is set up we get to go home!!
:) keep praying for Janessa, and keep following, I'm going to update this more often!!
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