Last Thursday we left for Philadelphia to have specialized tests ran on Janessa to get a better idea of what her condition may be. They had two diseases that Janessa may be experiencing. The MMIHS or Cloaca. Well the tests showed that Janessa most likely has MMIHS, but an official diagnoses won't be made until after Janessa is born. Of course MMIHS is a very rare disease, and in a lot of cases can be fatal to infants, but it was never really mentioned that Janessa wasn't going to make it. The process of MMIHS will be that after Janessa is born she will have to be put on a TPN, and a couple other tubes such as a catheter, and one for any fluid in her GI tract. The good news is that Janessa does have polyhydramnions(which is excessive amniotic fluid surrounding her) That is good because it developed her lungs and heart really well, also there is a less chance of renal damage in her. The reason for her having that, rather than oligohydramions is that her bladder is releasing fluid, but she doesn't have the smooth muscle development to push out her pee(which that muscle may develop as she ages). Another good thing is that in the MRI and ultrasound they noticed she had a bit a fluid running through her small bowel and intestines which is a very positive advantage to her.
We are leaving on the 25th to move up to Pennsylvania. Janessa will be c sectioned at Magee women's hospital, then immediately transported to Children's hospital of Pittsburgh. Within a year, if Janessa can withstand the TPN, she will be a candidate for multivesticular surgery(Surgery of the intestines, liver, etc). If she is unable to feed they will do it earlier. Hopefully Janessa will one day be off the TPN, and we be a normal little girl. :)
We have to keep strong, and keep her in our thoughts and prayers. Janessa will be in the hospital for a long time after birth(At least 7 months). She will need all the love and hope she can get!! Thank you all for doing so already, we really appreciate it! <3
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