We haven't been inpatient for quite some time, but our good luck streak seems to have run out. We came into Children's the 17th, Janessa had a fever at it's highest of 101.3, and had a pretty bad cough with it. Of course with a fever we can't be sure if it's a line infection or anything else with our central line kids. After our 6 hour ER stay with various culture draws from her central line, peripheral line, urine, stool, and a viral panel, we were placed on floor 8 until a room opened up on our normal 7B transplant floor.
So far we have had many issues with her GJ so clogged that we can't drain it, she has been throwing up so much that finally someone is calling the IR team to change it, hopefully they will do it either today or tomorrow. Janessa's viral panel came back positive for a virus, she has a pretty nasty cold going on, and she is just so exhausted and weak, but keeps fighting it. Her central line came back positive for staph on the 17th but was negative for the 18th so we think her line is a contaminate, if it's negative for the 19th, then her line is clear of infection. Her peripheral is clear, her stool is clear, and her urine is always positive as usual.
The doctors are upping her TPN to 20 hours because she lost weight and is 17.14 pounds again :( this is going to be a challenge for us since she is a mobile 2 year old! Janessa will be celebrating her second birth on Sunday, hopefully not here in the hospital.
Well I have to go, Janessa needs a nap! Sorry for any spelling or grammar errors as usual!
