2011 was a great year for Janessa, we had a few incidents the occurred from August - November, but nothing that wasn't helped by Children's of Pittsburgh. We also met a few great people this year, that I hope to remain in contact with, and hope that Janessa grows with within the years to come! Janessa this year has walked a long path, and has did very well, I am grateful that everyday I have her in my life, and I am willing to do anything in my power to keep her as well as possible and as I am sure as a lot of others who are experiencing this lifestyle with their children and family members as well their main priority is to keep their them happy, and to strive to keep them alive. <3 I hope that I can meet other TPN families this year, hopefully not in children's of course, because I want Janessa to meet others just like her, to know that she is not alone, and the world is full of possibility.
Janessa had her GJ tube put in on December 22nd, she did pretty well with it, it seemed like it irritated her for a few days at first and her pediasure peptide may have been a bit complex for her, but her neocate JR seems to be working well for her! We are hoping this will put some weight on her, but as with her diagnoses we can't get our hopes up because there is always a possibility it just won't happen. I'll update you guys once we get an idea on how much she really is absorbing and if she is gaining any weight on this new method, it's hard to imagine she would because she's starting out on such a small amount, but hey you never know!!
Marybeth
Sorry for any grammar errors I'm a bit tired :)
