And not much has happened really, Janessa has had a pretty good month with the exception of her recent oral aversion issues. Janessa originally loved different tastes, textures, and smells but now she doesn't like anything but flavored formula from her straw like sippy cup! We aren't really sure if it's medically related, sensory related, or that she just is too full(which we are leaning towards). Our occupational therapist has been working with us to help improve these recent eating issues she has required, and hopefully we can resolve such issues.
Today Janessa had an ICARE appointment which went okay, she neither gained nor lost any weight, so if next month if there is a re occurrence in this we will have to up her TPN an extra 2 hours to help her hopefully gain weight, but we are hoping that she eventually here will start putting the weight on from eating(if we can get her to eat). Other than that, she looks and is doing well, they changed her formula to pedia sure peptide which is just like pedia sure but with a different type of protein, it helps kids with malabsorption, so hopefully she will tolerate it well.
Janessa vocab has been growing, and she is starting to put words together now, her gibberish conversations are starting to actually sound like English words, we are just waiting until she is actually talking, and hopefully will begin walking here within the next 6 months.
That's really all the updates I have, school has been so busy, I just haven't had the time to update this thing!
