May 22nd 2010: 1 Month Old

I know I don't update this too much, not a lot has changed with Janessa, but I'll go through what all has happened so far!

During our final few days at children's they attempted to feed Janessa some breast milk to see if she could tolerate it. She wasn't able to, but they wanted to try again at a later date. Janessa was released from the NICU, and put in a regular room. She made a little friend there by the name of Bryan!! I'll post a picture of the two!!

they sure are cuties!

Janessa was released from children's, and Caleb and I are now with her at this place called the children's home! Here we are learning to do her TPN, and the rest of her care. We have everything basically complete right now, and Janessa is doing great!

During our stay here, Janessa has peed more frequently, but we still have to cath her every three hours. Also a few days ago they started the feeds again on Janessa and so far she has been tolerating them, and loves them! We are hoping we can increase the volume of formula, we will see!! Her condition is basically trail and error.

Also to my knowledge next week she has an appointment with the GI doctors, and they are going to start her on omegaven(a different type of lipid which is infuzed into her TPN) it's suppose to save livers from damage.

Right now all we are waiting for is the nurse care to be set up at night(12 hours a night) so Caleb and I can get some sleep!!(The catheter is the problem with Janessa it has to be done every 3, so you wake her up, do it, and spend 2 putting her back to sleep) After the nursing is set up we get to go home!!

:) keep praying for Janessa, and keep following, I'm going to update this more often!!

May 3rd 2010: 11 Days Old

Janessa Janee Peck was born April 22nd 2010 at 12:29PM. Janessa weighed 8 pounds 9 ounces, and was 19 3/4 inches long! Our journey through out this pregnancy has been a rough one, and it continues to be so! Janessa has officially been diagnosed with MMIHS. Luckily for Janessa her lungs and heart are outstanding, and her kidneys only have slight damage, they have amazing numbers with no reflux. Her vitals are really good, and she seems to have no other problems than what the MMIHS caused.

Janessa right now is on TPN 24 hours a day. She has a stoma bag, and we have to catheterize her every three hours since she can't contract her bladder to push pee out! We are going to have a rough road ahead of us, and a lot of hard times in the upcoming future.

Right now Janessa is facing a battle, a difficult one. The nutrition that is going into Janessa(TPN) can cause severe liver disease, and infection can get into the line very easily, so everything we do must be very sterilized.

Some babies don't get affected by the TPN as bad as other babies, many have great livers at four or five years old and have been on TPN since birth, others start showing signs of liver disease at 6 weeks!

We are hoping to be able to trickle feed Janessa some breast milk, it reduces liver disease in babies! But right now her bile is not clear enough, but it is showing signs of improvement!! :) Janessa may need a transplant of her small bowel/stomach. We are hoping she doesn't need one in her liver as well...

All we ask for from everyone is to please keep praying for her, and keep her in your thoughts!! Please pray that she will have a chance at growing up, and will pull through this disease despite what literature states about it.


Janessa should be coming home in about 2 weeks!! :)